Whilst this site is in development, one of the best sources of information and guidance can be found at AMAZE, a parent-run information website in Brighton and Hove.

This site is well worth a visit if you’d like to know more about direct payments, Special Educational Needs ... as well as survival tips on coping full-time with a child with complex needs.

Alternatively, you could contact Parents Voice – a group of parents on the Island who are keen to work with professionals to make a difference in the services that affect children with SEN/LDD.

If you want to have your voice heard and to influence decisions that directly affect you, find out more at:

www.parentsvoice-iw.co.uk/

For other useful sources of advice and information, see the links section.